Our mission is to speed treatments and cures for Rett Syndrome and related MECP2 disorders by funding research that will have a practical and positive effect on our children’s lives.
We fund research from basic science to clinical trials, and work to facilitate the translation of this work to clinical applications for our children with Rett Syndrome and related MECP2 disorders
Our vision is a world where girls with Rett Syndrome are diagnosed much quicker and earlier than they are at the moment. A world where we know much more about the progression of the condition and the factors that affect that progression. A world where at every stage of development treatments are available to mitigate against the distressing symptoms which can occur and ultimately a world where treatments are available which cure the condition and allow the girls to live normal lives.